Adelaide mother Lara Huddleston’s ALS diagnosis inspires quest for a lifetime’s memories for her baby boy

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DOCTORS initially told Lara Huddleston, she had postnatal depression.

She had begun to fight to get up from the floor after changing the baby Thomas diaper and kept tripping. Her weekend walks along Stirling's main street meant she was running through mud.

But when the diagnosis finally came in September, Lara was sad, but not surprised.

The 33-year-old has amyotrophic lateral sclerosis also known as ALS or Lou Gehrig's disease. It is the fastest development of the four diseases that fall under the banner of motor neuron disease. Everything involves the death of nerve cells that control the muscles and help us move and breathe.

Lara knows what's going on since she used to be her father, who died of the same hereditary disease when she was a teenager. He lived for three years after diagnosis. Her aunt lasted only two years, just like her grandmother. Lara is the youngest with 20 years to be diagnosed in her family.

Lara is not aware of making memories with her husband Adam and Thomas, who are 19 months old.

"Every day, I think you lose something," she says.

"Every day, a part of your body does not work: a part of your soul begins to shut down. Every day I'm closer to the inevitable. I know what I can expect; I've seen family members go away from it. I wake up in the morning, I feel like I could sleep asleep all day. It's my body that closes. "

The family is trying to raise money for a van that fits Lara's electric wheelchair and allows them to take a couple of trips, including to Darwin.

She also attempts alternative treatments like cannabis oil and vitamin infusions, all of which can give her more valuable time with her family.

"I worry about my young son and his future," says Lara. "I also care about Adam, they are the life of my life. I find it a scary thought not to be here for them. But I do what I can to keep my memory alive. The day he begins at school gets married I'm writing briefly to everything. "

To help Lara, visit gofundme.com/whwvu-lara-huddleston

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